CurePSP - Foundation For PSP, CBD & Related Brain Diseases
To increase awareness of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and related brain diseases; fund research toward cure and prevention; educate healthcare professionals; and provide support, information, and hope for affected persons and their families.
Description:
CurePSP - Foundation for PSP, CBD & Related Brain Diseases is a non-profit international organization providing research for a cure, and outreach and education to families affected by PSP.
PSP - Progressive supranuclear palsy is a fatal, under-recognized brain disease with no known cause, treatment, or cure. PSP is often misdiagnosed as Parkinson’s disease because of the general slowing of movement. Less often, it is mistaken for Alzheimer’s disease because of its change in mood, intellect, and personality. Symptoms typically begin in one’s 60’s, but can start as early as the 40’s, with a range from the early forties to the late eighties. These symptoms include reduced control of walking, balance, frequent falls, swallowing, speaking and eye movement. People with PSP eventually become wheelchair bound or bedridden.
CBD - Corticobasal degeneration is a rare neurological disease in which parts of the brain deteriorate or degenerate. Symptoms of CBD usually begin after age 60. The initial symptoms of CBD are often stiffness, shakiness, jerkiness, slowness, and clumsiness, in either the upper or lower extremities. Symptoms usually begin on one side of the body, and spread gradually to the other. A person with CBD will usually become immobile due to rigidity within five years of symptom onset, and may require a gastrostomy tube for feeding at some point before that. Most often, within ten years of onset, pneumonia or other bacterial infections may lead to life-threatening complications.
History:
The foundation (now also known as CurePSP) was incorporated in 1990 and funds research grants worldwide to find a cure for progressive supranuclear palsy, provides 7-10 family conferences annually, along with support groups throughout the United States, Canada, and Austrailia, as well as an annual scientific research symposium for physicians and other healthcare providers, and provides educational materials, website and other vital services. Fundraising activities provide the financial support for all programs. PR activities include press releases, etc. across the nation.
Contact person: Karin Martin, Program Coordinator, (phone), (email)
Office fax number: (410) 785-7009
Address:
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Executive Plaza III, 11350 McCormick Road, Suite 906Hunt Valley, MD 21031(See a map) |
Web Site: http://www.curepsp.org
Miscellaneous Information
| Does this agency accept court appointed volunteers? |
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No
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| Last updated on November 5, 2009 |
